Perspectives on health and well-being in human vulnerability

EDITORIAL

Perspectives on health and well-being in human vulnerability

 

Citation: Int J Qualitative Stud Health Well-being 2016, 11: 31477 - http://dx.doi.org/10.3402/qhw.v11.31477

Copyright: © 2016 H. Jormfeldt. This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 International License, allowing third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material for any purpose, even commercially, provided the original work is properly cited and states its license.

Published: 10 May 2016

 

As a guest editor of the special edition of the International Journal of Qualitative Studies on Health and Well-being I would like to present seven designated articles. The current thematic cluster represents qualitative research illustrating the challenges in supporting the central aspects of health and well-being for individuals in various situations linked to human vulnerability. This theme cluster will provide the reader with a new and greater understanding of the inner meaning of vulnerability and greater insights into how health and well-being, achieved through different forms of support and care, can enhance empowerment in spite of obstacles such as illness, disease, impairment, old or young age, or gender. Different kinds of qualitative methodologies have been used to elucidate the phenomenon of vulnerability. Data collection procedures vary from qualitative interviews and diaries to focus group interviews. Qualitative content analysis, phenomenographical approach, and grounded theory are used to analyse the data in the different studies. The common denominator for the included articles is the commitment of the authors to impart knowledge in terms of greater understanding of the core aspects of health and well-being among humans in different vulnerable situations.

Vulnerability is a condition that is relevant for all human beings, but is especially actualized in connection with loneliness, injury, ill health and death. An overall responsibility for the professionals who take care of people in situations where they face vulnerability is thus to help and support the exposed individuals in attaining improved health and well-being. Professionals, such as psychologists, social workers and nurses from all the specialities, have a responsibility in their work to facilitate their clients’ empowerment processes. A prerequisite for them to be able to contribute with help and support in a constructive manner is knowledge about what support is needed for people in vulnerable situations. Participation in healthcare situations among children with juvenile idiopathic arthritis is one specific example where healthcare professionals need more knowledge from the perspective of the children. A constructivist grounded theory is used in order to understand the factors that influence the promotion of increased child participation in healthcare (Gilljam, Arvidsson, Nygren, & Svedberg, 2016). Previous research into the participation of children with juvenile idiopathic arthritis in healthcare situations most often focussed on the perspectives of the parents and healthcare professionals but not on the perspectives of the vulnerable children themselves. Adult patients with established rheumatoid arthritis are also vulnerable and they often experience that quality of life entails a constant balancing of lifestyle habits between the ideal situation (ideality) and the actual situation (reality) (Malm et al., 2016). The knowledge of how lifestyle habits for these patients influence their quality of life in terms of limitations, self-regulation, and companionship provides a further example of human vulnerability which is elucidated by means of a qualitative content analysis according to Graneheim and Lundman (2004). A woman in early labour represents another example of a vulnerable situation. Early labour is depicted as the very first phase of the labour process when professionals are generally deemed not to be needed (Carlsson, 2016). Women have reported that they are often left in a vulnerable situation in this phase, where their preferences are not always met and where they are not always included in the decision-making process. One core prerequisite for midwifes is thus knowledge about how to support women in early labour so that they feel that they are in a safe and secure place. A grounded theory approach was used to reveal a substantive theory of women needs.

In order to facilitate the recovery of women after a myocardial infarction, a qualitative content analysis was carried out (Wieslander, Mårtensson, Fridlund, & Svedberg, 2016). Findings suggest that both a preventive and promotive perspective should be taken into consideration in personal recovery among women after a myocardial infarction. Health promotion also plays an important role in the management of diabetes and chronic kidney disease in Vietnam, especially when the prevalence of the disease is rising there (Pham & Ziegert, 2016). To gain knowledge about the needs for health promotion among Vietnamese nurses a phenomenographical approach was adopted, which concluded that health promotion needs to be further integrated into the education if these vulnerable people are to receive adequate and appropriate support (Pham & Ziegert, 2016). Vulnerability among elders with a high fall risk in independent living was elucidated by using a classic grounded theory design showing that seniors were resolving their main concern of being able to carry on being themselves as they used to in their earlier lives by self-preservation strategies (Källstrand Eriksson, Hildingh, Buer, & Thulesius, 2016). The common issue in all of the presented articles highlights human vulnerability and the significance of the knowledge and ability needed to provide practical and emotional support in order to be able to help the individual verbalize his or her needs and desires.

These papers demonstrate that one essential and shared aspect of enhanced health and well-being can be understood as a relief from the position of vulnerability, regardless of its origin. Equality in decision-making processes is achieved through a genuine dialogue that aims to support the individual’s personal resources and insights. The revealed knowledge about the nature of vulnerability may constitute a necessary prerequisite for the further development of our ability to reduce vulnerability and strengthen our capability for supporting coping strategies, such as decision making in accordance with the personal preferences of those in vulnerable situations. The presented articles indicate core aspects of perspectives on health and well-being when they are needed the most, such as in situations linked to human vulnerability. This theme cluster will provide the reader with new comprehension of the meaning of vulnerability and greater realisation into how intervntions to improve health and well-being can enhance empowerment regardless of illness, disease, impairment, old or young age, or gender.

Henrika Jormfeldt, RNT, PhD
School of Health and Welfare
University of Halmstad
Halmstad, Sweden
E-mail: Henrika.jormfeldt@hh.se

References

Carlsson, I.-M. (2016). Being in a safe and thus a secure place, the core of the early labour: A secondary analysis in a Swedish context. International Journal of Qualitative Studies and Well-being, 11, 30230. doi: http://dx.doi.org/10.3402/qhw.v11.30230

Gilljam, B.M., Arvidsson, S., Nygren, J. M., & Svedberg, P. (2016). Promoting participation in healthcare situations for children with JIA: a grounded theory study. International Journal of Qualitative Studies on Health and Well-being, 11, 30518. doi: http://dx.doi.org/10.3402/qhw.v11.30518

Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112. PubMed Abstract | Publisher Full Text

Källstrand Eriksson, J., Hildingh, C., Buer, N., & Thulesius, H. (2016). Seniors’ self-preservation by maintaining established self and defying deterioration – A grounded theory. International Journal of Qualitative Studies on Health and Well-being, 11, 30265. doi: http://dx.doi.org/10.3402/qhw.v11.30265

Malm, K., Bremander, A., Arvidsson, B., Andersson, M. L. E., Bergman, S., & Larsson, I. (2016). The influence of lifestyle habits on quality of life in patients with established rheumatoid arthritis—A constant balancing between ideality and reality. International Journal of Qualitative Studies on Health and Well-being, 11, 30534. doi: http://dx.doi.org/10.3402/qhw.v11.30534

Pham, L., & Ziegert, K. (2016). Ways of promoting health to patients with diabetes and chronic kidney disease from a nursing perspective in Vietnam: A phenomenographic study. International Journal of Qualitative Studies on Health and Well-being, 11, 30722. doi: http://dx.doi.org/10.3402/qhw.v11.30722

Wieslander, I., Mårtensson, J., Fridlund, B., & Svedberg, P. (2016). Women’s experiences of how their recovery process is promoted after a first myocardial infarction: Implications for cardiac rehabilitation care. International Journal of Qualitative Studies on Health and Well-being, 11, 30633. doi: http://dx.doi.org/10.3402/qhw.v11.30633

About The Author

Henrika Jormfeldt
Halmstad University
Sweden

Henrika Jormfeldt is a registered specialized nurse in mental health nursing since 1993- She defended her PhD dissertation (Dimensions of health among patients in mental health services) at the Department of Health Sciences, Faculty of Medicine, Lund University, Sweden in 2007. Research topics have focused in defining health in mental health services, psychiatric rehabilitation and empowering psychoeducation for individuals with long term mental illness. Today, Henrika is Associate Professor at Halmstad University, Sweden. She is teaching at the Postgraduate Diploma in Specialist Nursing – Mental Health Care and researching in mental health nursing. Part of her research can be characterized as multidisciplinary. Alongside nursing, psychiatry, sociology and social work are disciplines being involved in her research. In teaching her main interests are mental health issues and inequalities in society in broad perspectives as well as research methods related to mental health and nursing. Henrika Jormfeldt has been a member of the board of the Swedish Association of Psychiatric and Mental Health Nurses since 2009 and became the Chair in 2014. The aim of the association is to stimulate the profession of mental health nurses as well as the health and wellbeing of the mental health services users. Today, Henrika and her colleagues are studying the prerequisites of physical health among patients in mental health services. A main goal in the current research is to raise the awareness among mental health nurses and other professionals in mental health services regarding the needs of users concerning support of their holistic health. Also PhD students are part of a long-term research project “The Life-project” with a main focus on individualized life style interventions among persons diagnosed with schizophrenia. An interest in equine assisted activities (EAA) aimed to increase health among service users in mental health services has implied a new field of research even though these investigations are in its early stages yet.

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